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We invite you to become a member of the Sotos Syndrome Support Association for just $35 a year.

To purchase a 1 year membership for $35 through PayPal click here – 1 Year Membership
To subscribe to an annual automatically renewed subscription discounted to $25 per year from your PayPal account,
click here – Annual Membership Subscription

As a member you will receive our monthly email newsletter, SSSA Notes and access to the Members Only portion of this web site.  Each month the newsletter contains members’ personal stories, tips and advice as well as announcements of conferences and seminars.  The Members Only portion of our web site contains a roster of contact information of all active members, a photo gallery, access to our advisory board of professionals and archives of past newsletters.

More importantly, by becoming an SSSA member you will be supporting our organization and the programs that we offer to the public such as:

  • An Annual Conference for families to network and learn more about the syndrome from experts in medical, educational and therapeutic fields.
  • A toll-free phone line (888) 246-7772 ringing into the home of a veteran member, offering support and answers to questions about Sotos syndrome and the SSSA.
  • Distribution of an informational book Sotos Syndrome:A Handbook for Families written by experts in the syndrome from the University of Nebraska.
  • Distribution of an informational DVD Sotos Syndrome: A Journey from Diagnosis through Life produced by the SSSA featuring experts, parents and individuals with the syndrome speaking of their experiences and expectations.



If you want to join but do not use PayPal, click here.  Please make check for $35 payable to Sotos Syndrome Support Association or SSSA, and mail to:

SSSA, Attn: Monica Jacobs, Treasurer
375 W. Sunset Street
Gardner, KS 60030

Membership $35 –Your generosity helps us make a difference in the lives of children and families living with Sotos syndrome.  If financial assistance is needed, please call toll-free 1-888-246-7772, email: or click here.



"Always be yourself because the people that matter don't mind and the ones that mind, don't matter." Dr. Seuss
"It does not matter how slowly you go as long as you do not stop." Confucius
"Never let the fear of striking out get in your way." Babe Ruth
"Difficult roads often lead to beautiful destinations" Author Unknown
"Be the change you wish to see in the world." Mahatma Gandhi
"A good head and a good heart are always a formidable combination." Nelson Mandela
"The true measure of a man is how he treats someone who can do him absolutely no good." Samuel Johnson
"Where there is charity and wisdom, there is neither fear nor ignorance." Francis of Assisi
"Never believe that a few caring people can't change the world. For indeed, that's all who ever have." Maragaret Mead
"Write your sad times in sand, write your good times in stone." George Bernard Shaw
"It's nice to be important but it's important to be nice." Unknown
"Whatever you are, be a good one." Abraham Lincoln
"It all comes to this: the simplest way to be happy is to do good." Helen Keller
"Don't let what you cannot do interfere with what you can do." John Wooden
"The way I see it, if you want the rainbow, you gotta put up with the rain." Dolly Parton
"If you see a friend without a smile; give him one of yours." Proverb
"Good works are links that form a chain of love." Mother Teresa
"All you need is love, but a little chocolate now and then doesn't hurt." Charles Schultz
"If you haven't any charity in your heart, you have the worst kind of heart trouble." Bob Hope
"A true hero is not measured by the size of his strength but by the strength of his heart." Zeus (Disney's Hercules Movie)
"What would you attempt to do if you knew you could not fail?" Robert Schuller