Speakers
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Jennifer Kalish, MD, PhD
Dr. Kalish is a pediatric geneticist at Children’s Hospital of Philadelphia (CHOP). She received her PhD in Genetics and her MD from Yale University, and an MS in Translational Research from the University of Pennsylvania.
Loryn Brantz
Loryn is a New York City-based author, illustrator, comic creator, and Emmy-winning producer who shares her life experience in raising her Sotos daughter, Dahlia.
Brad Schaefer, MD
Dr. Shaefer is a professor of Pediatric, Genetics, and Internal Medicine, the University of Arkansas for Medical Sciences.
Jill Fahrner, MD, PhD
Dr. Fahrner is an assistant professor in the Departments of Genetic Medicine and Pediatrics at the Johns Hopkins University School of Medicine. Her area of clinical expertise is medical genetics.
Alison Foster, MRCPCH, PhD
Dr. Foster is a Consultant in Clinical Genetics at Royal Devon University Hospitals and Honorary Consultant at Birmingham Women’s and Children’s Hospitals.
Jacqueline Harris, MD
Dr. Harris is the director of the Epigenetics Clinic at Kennedy Krieger Institute and an associate professor in pediatrics, neurology and genetics at The Johns Hopkins University School of Medicine.
Lauren West, MS, CCC-SLP
Lauren is a speech-language pathologist for the Omaha Public School system. She has a specific interest in and knowledge of the speech, language, and communication characteristics of individuals with Sotos.
Megan Litkenhaus, DO
Dr. Litkenhaus is an Attending Physician of Obstetrics and Gynecology with Christiana Care, and a faculty member for the Delaware Christiana Care OB/GYN Residency Program.
Marisa Gilstrop, MD
Dr. Gilstrop is the head of Prenatal Genetics at the Delaware Center for Maternal and Fetal Medicine. An authority on prenatal screening, genetic testing with IVF, diagnostic genetic testing in pregnancy, and pregnancy risk factors.
Makaela Somma, MS, CCC-SLP
Makaela is a speech-language pathologist with experience working with Sotos children at the Department of Speech-Language Pathology and the Center at the Children’s Hospital of Philadelphia.
Dr. Leah Wibecam
Mass General/Harvard Medical School faculty. Dr. Wibecam will be co-presenting Standing Tall for Sotos.
Melissa Godesky
Melissa is the mother to Dantae, her 16-year-old Sotos son. Her topic is Championing for Your Child: Empowering Your Child’s Journey.
Regina Wilson, MS OTR/L
Regina is an occupational therapist with St. Christopher’s Hospital for Children in Philadelphia. She will be addressing sensory processing/regulation and behavior.
Kim Little
Kim is the mother of Ellyn, a 34-year-old female with Sotos Syndrome. Kim will be co-presenting Standing Tall For Sotos.
Jayme Betts
Jayme is the mother of Sophia, a six-year-old female with Sotos Syndrome. Jayme will be co-presenting Standing Tall For Sotos.
Dianna Perry
Diane is a Program Manager for the PEAL Center in Philadelphia. Her presentation will discuss what is an IEP, the IEP process, components of an IEP, and parental involvement and advocacy.
Dr. Angela E. Lin
Dr. Lin is a Board-certified pediatrician and a staff geneticist and a Professor in Pediatrics, Harvard Medical School. Dr. Lin will be co-presenting Standing Tall For Sotos.
Dr. Mandy Nagy
Mass General/Harvard Medical School faculty. Dr. Nagy will be co-presenting Standing Tall for Sotos.
Domenico Coviello, MD, PhD
Dr. Coviello is currently the Director of the Laboratory of Human Genetics at IRCCS Giannina Gaslini Institute, Genoa Italy. He will be presenting International Focus on the Clinical Aspects and Diagnosis of Sotos Syndrome.