The Sotos Syndrome Support Association holds a conference one weekend every summer. Activities take place from Friday afternoon through Sunday afternoon.

The 2025 SSSA Conference will be in Philadelphia, Pennsylvania – July 11-13, 2025. The hotel is the Sonesta Rittenhouse Square. The Conference room rate $160 and rooms can be reserved here.

Families and professionals come from all over the world to learn, network and bond with one another. We combine a program of speakers with social events for the whole family to educate and inspire families on their journey with Sotos Syndrome.

Adult Registration and Childcare/Young Adult Activities fees will be posted here when decided upon.

Thank You to our 2024 Conference Sponsors!

At the conference new information is shared with families by experts in the field who have access to the most up-to-date information and international expertise. Some of this information may not be available in the medical literature at the current time. Dr. Alison Foster (United Kingdom), Dr. Jill Fahrner (USA) and Dr. Jacqueline Harris (USA), are three of the the world’s leading authorities on Sotos Syndrome and other overgrowth disorders and attend the conference every year.

At the conference new information is shared with families by experts in the field who have access to the most up-to-date information and international expertise. Some of this information may not be available in the medical literature at the current time. Dr. Alison Foster (United Kingdom), Dr. Jill Fahrner (USA) and Dr. Jacqueline Harris (USA), are three of the the world’s leading authorities on Sotos Syndrome and other overgrowth disorders and attend the conference every year.

The conference begins on Friday evening with dinner and entertainment for the whole family. For many families, this is the first time they have ever met another person with Sotos Syndrome and it can be a huge relief to finally see that they are not alone. We make the evening relaxed and fun for all ages to allow families to become acquainted and renew friendships.

During the Friday evening social, silent auction items will be on display for all to bid upon. Our silent auction features items and services donated by our member families and friends of the SSSA. Proceeds from the silent auction are used to sustain the Carol Richey Conference Assistance Fund which provides assistance to families in need of financial aid to attend their first conference.

Also on display will be our “Brag-Table”. Parents are encouraged to bring trophies, medals or photo albums to help others see just how far your little one has come or how much CAN be accomplished. Drop off your items during registration on Friday afternoon and collect them at the end of our dinner and entertainment.