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Conference FAQ

How many people come to the conference?

Average attendance is about 60 families for a total of 175 people. The majority come from the USA and Canada and there are usually some families from overseas too. You’ll meet about 50 people with Sotos of all ages from infants and toddlers to teens and adults.

Do I have to bring my child with Sotos?

Most families bring their child with Sotos, especially if it is their first conference. This is the easiest way to meet with one of the medical experts and discuss any questions. Some people don’t bring their child with Sotos if traveling is difficult or expensive or if they have attended numerous conferences and simply wish to stay in touch with fellow Sotos families. Another consideration is that older children with Sotos often appreciate the opportunity to meet other individuals with Sotos who are “just like me”. With or without your child- either way is fine – you’ll enjoy the conference.

Can I still have a doctor’s appointment if I don’t bring my child with Sotos?

Yes, just bring photos and your child’s medical records.

Is there an extra charge for a doctor’s appointment?

No, it’s included in the conference fee.

What about bringing other children?

We provide exceptional childcare throughout the conference for all the children with Sotos and their typical siblings. We aim to make sure that all the children have a great time. Many families make the Sotos Conference part of their annual holiday and take the opportunity to visit new parts of the country. Sometimes older siblings benefit from meeting other families dealing with Sotos and learning that they are not alone.

What is there for my young adult with Sotos to do at the conference?

He/She may either register as an adult and attend the workshops, or register as a child/young adult and take part in the fun activities on Saturday and Sunday with the older teens.

Can I bring my infant to the lectures with me instead of paying for childcare?

Yes, as long as they are completely quiet. You must be prepared to leave the lecture if they are disturbing anyone.

My children don’t need supervision (or another friend/relative is coming along to watch them) so I won’t be using the conference childcare. Do I need to register them for the conference?

No, but they will not be included in the Saturday group lunch or Sunday group breakfast.   If they will be attending the Friday evening family dinner/entertainment, they will need to pay a separate fee for the Friday ONLY meal. Separate pricing for Sunday breakfast is not available.

Which meals are included in the conference?

The registration fee includes Friday dinner, Saturday lunch and Sunday breakfast for adults and children. You are responsible for the rest of your meals.

What is the dress code for dinner on Friday evening?

As a family event, the dinner on Friday evening is relaxed and casual. Most people wear clothing somewhere between everyday-casual and business-casual. It’s definitely not fancy or formal.

What flight times should I book?

Conference check-in begins at Noon on Friday. Your flight times depend on whether you want to have a doctor appointment or not.  The conference takes place from noon on Friday until 5 p.m. on Sunday.

Will I receive confirmation of my registration?

Yes. We’ll e-mail you approximately 2 weeks after we receive your registration and payment.

Where is the next conference?

We try to move the conferences around the U.S. and Canada to make it easier for different families to travel to the conference each year.  The location of the following year’s conference is usually available on the web site by July each year.  At any time of the year you can contact us at or call 1-888-246-7772 to ask about future conferences.  If you are interested in organizing a conference in your home town, please contact us.

What happens if I cancel my conference registration?

Cancellation requests received by 1 week before the start of the conference will receive a full refund. Other requests will be considered on a case-by-case basis. You can e-mail your cancellation to or phone 1-888-246-7772.

I still have more questions. How can I get more information?

You can e-mail or phone 1-888-246-7772.


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