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CD“A Journey From Diagnosis Through Life” (DVD)

Created by the Sotos Syndrome Support Association, this 30 minute video contains interviews of doctors, families and individuals with Sotos syndrome.  Learn the basic characteristics of the syndrome as explained by experts.  Hear from real people as they describe their experiences and expectations.  This video has available subtitles in Spanish, French and Italian.

Cost is $5.00 US per DVD.



“Sotos Syndrome: A Handbook for Families” (Third Edition)

Now available in English and Spanish!

by Rebecca Rae Anderson, J.D.; M.S.,
Bruce A. Buehler, M.D.,
G. Bradley Schaefer, M.D.

Cost is $15.00 US per Book.

A Description of the Syndrome

  • The Newborn Period
  • Infants and Toddlers
  • Young Children
  • Adulthood
  • Differential Diagnoses
  • Genes and Heredity
  • The Role of the Schools
  • Community Resources
  • Siblings and Families
  • The Wider Community
  • Coming to Terms

Medical and Developmental Evaluations

  • Genetics
  • Central Nervous System
  • Internal Organs
  • Muscle
  • Skeletal System
  • Endocrine
  • Hearing
  • Speech and Language
  • Eyes and Vision
  • Development and Intelligence
  • Behavioral and Psychiatric
  • Glossary of terms used


To Pay by Check

Please complete the DVD and Handbook Order Form and mail to:

  • Sotos Syndrome Support Association
    Attn: Monica Jacobs, Treasurer
  • 375 W. Sunset Street
  • Gardner, KS   60030



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