Top Menu

Join Now


We invite you to become a member of the Sotos Syndrome Support Association for just $35 a year.

To purchase a 1 year membership for $35 through PayPal click here – 1 Year Membership
To subscribe to an annual automatically renewed subscription discounted to $25 per year from your PayPal account,
click here – Annual Membership Subscription

As a member you will receive our monthly email newsletter, SSSA Notes and access to the Members Only portion of this web site.  Each month the newsletter contains members’ personal stories, tips and advice as well as announcements of conferences and seminars.  The Members Only portion of our web site contains a roster of contact information of all active members, a photo gallery, access to our advisory board of professionals and archives of past newsletters.

More importantly, by becoming an SSSA member you will be supporting our organization and the programs that we offer to the public such as:

  • An Annual Conference for families to network and learn more about the syndrome from experts in medical, educational and therapeutic fields.
  • A toll-free phone line (888) 246-7772 ringing into the home of a veteran member, offering support and answers to questions about Sotos syndrome and the SSSA.
  • Distribution of an informational book Sotos Syndrome:A Handbook for Families written by experts in the syndrome from the University of Nebraska.
  • Distribution of an informational DVD Sotos Syndrome: A Journey from Diagnosis through Life produced by the SSSA featuring experts, parents and individuals with the syndrome speaking of their experiences and expectations.



If you want to join but do not use PayPal, click here.  Please make check for $35 payable to Sotos Syndrome Support Association or SSSA, and mail to:

P.O. Box 4626
Wheaton, IL 60189

Membership $35 –Your generosity helps us make a difference in the lives of children and families living with Sotos syndrome.  If financial assistance is needed, please call toll-free 1-888-246-7772, email: or click here.



"Never believe that a few caring people can't change the world. For indeed, that's all who ever have." Maragaret Mead
"It does not matter how slowly you go as long as you do not stop." Confucius
"The true measure of a man is how he treats someone who can do him absolutely no good." Samuel Johnson
"A true hero is not measured by the size of his strength but by the strength of his heart." Zeus (Disney's Hercules Movie)
"All you need is love, but a little chocolate now and then doesn't hurt." Charles Schultz
"If you haven't any charity in your heart, you have the worst kind of heart trouble." Bob Hope
"What would you attempt to do if you knew you could not fail?" Robert Schuller
"Good works are links that form a chain of love." Mother Teresa
"Be the change you wish to see in the world." Mahatma Gandhi
"Whatever you are, be a good one." Abraham Lincoln
"Difficult roads often lead to beautiful destinations" Author Unknown
"Write your sad times in sand, write your good times in stone." George Bernard Shaw
"Don't let what you cannot do interfere with what you can do." John Wooden
"Never let the fear of striking out get in your way." Babe Ruth
"Always be yourself because the people that matter don't mind and the ones that mind, don't matter." Dr. Seuss
"It's nice to be important but it's important to be nice." Unknown
"A good head and a good heart are always a formidable combination." Nelson Mandela
"It all comes to this: the simplest way to be happy is to do good." Helen Keller
"The way I see it, if you want the rainbow, you gotta put up with the rain." Dolly Parton
"Where there is charity and wisdom, there is neither fear nor ignorance." Francis of Assisi
"If you see a friend without a smile; give him one of yours." Proverb