July 12 - 14
Registration is now open!
Sotos Gene Discovered
Our esteemed Medical Advisory Board offers their coordinated point of view to help us understand what this means for all of us. The goal of this letter is to inform parents, provide perspective and look to the future.
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Organizations and Associations of Interest
Association for Children with Downs Syndrome
The Association for Children with Down Syndrome offers educational, theraputic, behavorial and health-related services to persons with Down Syndrome and their families. Also take a look at the Downs Syndrome WWW Page.
Association for Glycogen Storage Disease - UK
This home page provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families and other interested parties.
Children and Adults with Attention Deficit Disorders (CH.A.D.D.)
Through family support and advocacy, public and professional education and encouragement of scientific research, CH.A.D.D. works to ensure that children and adults with ADD are given the opportunity to reach their potential.
Directory of Genetic Support Groups
Professionals, educators, or individuals seeking information on genetic conditions or birth defects may find searching this list helpful, or find additional information through national organizations.
The Easter Seal Gateway
A service of the National Easter Seal Society - U.S.A.
National Organization of Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) has been created by a group of voluntary agencies, medical researchers and individuals concerned about Orphan Diseases and Orphan Drugs. Orphan Diseases are rare, debilitating illnesses which strike small numbers of people. Orphan Drugs are therapies which alleviate symptoms of some rare diseases, but which have not been developed by the pharmaceutical industry because they are unprofitable.
References and Resources on Disabilities
Americans with Disabilities Act
This resource includes not only the text of regulations, subdivided by Federal agency, but also a wealth of supporting information and pointers to off-line resources.
ADA Document Center
This website contains copies of the Americans with Disabilities Act of 1990 (ADA), ADA regulations, technical assistance manuals prepared by the United States Equal Employment Opportunity Commission (EEOC) or the United States Department of Justice(DOJ), and other technical assistance documents sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR) and reviewed by EEOC or DOJ.
The Arc of the United States
The country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families.
The Boulevard is dedicated to improve the quality of life for individuals with a disability by providing a resource of information.
Developmental Disabilities Centre
University of Alberta: Its current activities are: research, student training, publication, and selected clinical services for children and adults with mental retardation and other disorders that affect learning and originate in the childhood.
Disabled Peoples' International
The main functions of DPI are Development, Human Rights, Communications, Advocacy and Public Education.
Lots of disabilities links on the internet.
Jim Lubin's Disability Information Menu
Where can one find general publications, government documents, and statistics for and about people with disabilities?
Seizures have been observed in some individuals having Sotos or are Sotos-like. The link provides information to those that are dealing with it in their personal lives.
Science, Engineering, and Math (SEM) Program
The SEM Program strives to increase the number of individuals with disabilities in SEM academic programs and professions. The Program consists of a wide array of activities including student, family, and professional involvement as well as research.
Sleep Disorders Guide
Sleep disorders are the disorders in sleep pattern. Learn More...
Education and Support
Help For the Family with the Special Child
For anyone who has a Child with Special Educational needs.
National Early Childhood Technical Assistance System (NEC*TAS)
A program of the Frank Porter Graham (FPG) Child Development Center at the University of North Carolina at Chapel Hill .
Special Education Resource Page
Projects and practical information relating to arts, craft and and emphasis on technology.
Other Special Education Links
Yahoo links to pages with other links...