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Conference Agenda

Sotos Syndrome Annual Conference Agenda

Agenda

Friday Noon – 5 PM Arrival and Check-In
Scheduled Doctor Appointments
5 PM – 9 PM Welcome and Introductions
Family Dinner and Entertainment
Silent Auction
Saturday 8 AM – 9 AM Drop-off Children at Child/Young Adult Activities
9 AM – 5 PM Lectures / Workshops for Adults
Lunch (provided)
More Lectures / Workshops
Pick-up Children from Child/Young Adult Activities
5 PM onwards Free Time
Sunday 7:30 AM – 9 AM Family Breakfast (provided)
Drop-off Children at Child/Young Adult Activities
9 AM – Noon Q&A Expert Panel
SSSA Annual General Meeting (for all attendees)
Pick-up Children from Child/Young Adult Activities
Noon – 5 PM Scheduled Doctor Appointments

Core Speakers

Rebecca Anderson, B.A., J.D., M.S.

Rebecca Anderson, B.A., J.D., M.S.

Ms. Anderson is the primary author of
Sotos Syndrome: A Handbook for Families,
an attorney, genetics counselor, academician and a
lifelong supporter of the SSSA.

 

Dr. Trevor Cole, MB, ChB, FRCPDr. Trevor Cole, MB, ChB, FRCP

Dr. Cole is a consultant in clinical genetics
at Birmingham Women’s Hospital, U.K..
He has conducted several studies and published
numerous papers on Sotos Syndrome.

 

Dr. Bradley Schaefer, M.D.

Dr. Bradley Schaefer, M.D.

Dr. Schaefer is Board Certified in Pediatrics,
Human Genetics and Pediatric Endrocrinology.
His research explores neurogenetics and
neurodevelopmental disabilities.

   

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"Always be yourself because the people that matter don't mind and the ones that mind, don't matter." Dr. Seuss
"A true hero is not measured by the size of his strength but by the strength of his heart." Zeus (Disney's Hercules Movie)