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Conference Agenda

Sotos Syndrome Annual Conference Agenda


Friday Noon – 5 PM Arrival and Check-In
Scheduled Doctor Appointments
5 PM – 9 PM Welcome and Introductions
Family Dinner and Entertainment
Silent Auction
Saturday 8 AM – 9 AM Drop-off Children at Child/Young Adult Activities
9 AM – 5 PM Lectures / Workshops for Adults
Lunch (provided)
More Lectures / Workshops
Pick-up Children from Child/Young Adult Activities
5 PM onwards Free Time
Sunday 7:30 AM – 9 AM Family Breakfast (provided)
Drop-off Children at Child/Young Adult Activities
9 AM – Noon Q&A Expert Panel
SSSA Annual General Meeting (for all attendees)
Pick-up Children from Child/Young Adult Activities
Noon – 5 PM Scheduled Doctor Appointments

Core Speakers

Rebecca Anderson, B.A., J.D., M.S.

Rebecca Anderson, B.A., J.D., M.S.

Ms. Anderson is the primary author of
Sotos Syndrome: A Handbook for Families,
an attorney, genetics counselor, academician and a
lifelong supporter of the SSSA.


Dr. Trevor Cole, MB, ChB, FRCPDr. Trevor Cole, MB, ChB, FRCP

Dr. Cole is a consultant in clinical genetics
at Birmingham Women’s Hospital, U.K..
He has conducted several studies and published
numerous papers on Sotos Syndrome.


Dr. Bradley Schaefer, M.D.

Dr. Bradley Schaefer, M.D.

Dr. Schaefer is Board Certified in Pediatrics,
Human Genetics and Pediatric Endrocrinology.
His research explores neurogenetics and
neurodevelopmental disabilities.


"Good works are links that form a chain of love." Mother Teresa
"The true measure of a man is how he treats someone who can do him absolutely no good." Samuel Johnson
"Always be yourself because the people that matter don't mind and the ones that mind, don't matter." Dr. Seuss
"A true hero is not measured by the size of his strength but by the strength of his heart." Zeus (Disney's Hercules Movie)
"The way I see it, if you want the rainbow, you gotta put up with the rain." Dolly Parton
"Don't let what you cannot do interfere with what you can do." John Wooden
"It all comes to this: the simplest way to be happy is to do good." Helen Keller
"All you need is love, but a little chocolate now and then doesn't hurt." Charles Schultz
"If you see a friend without a smile; give him one of yours." Proverb
"If you haven't any charity in your heart, you have the worst kind of heart trouble." Bob Hope
"Difficult roads often lead to beautiful destinations" Author Unknown
"Never let the fear of striking out get in your way." Babe Ruth
"Never believe that a few caring people can't change the world. For indeed, that's all who ever have." Maragaret Mead
"Be the change you wish to see in the world." Mahatma Gandhi
"A good head and a good heart are always a formidable combination." Nelson Mandela
"It does not matter how slowly you go as long as you do not stop." Confucius
"Whatever you are, be a good one." Abraham Lincoln
"Where there is charity and wisdom, there is neither fear nor ignorance." Francis of Assisi
"Write your sad times in sand, write your good times in stone." George Bernard Shaw
"What would you attempt to do if you knew you could not fail?" Robert Schuller
"It's nice to be important but it's important to be nice." Unknown