July 12 - 14
Registration is now open!
Sotos Gene Discovered
Our esteemed Medical Advisory Board offers their coordinated point of view to help us understand what this means for all of us. The goal of this letter is to inform parents, provide perspective and look to the future.
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Books, Article, and Brochures
"A Journey From Diagnosis Through Life" (DVD)
This 30 minute professionally produced video contains interviews made with doctors, families and individuals with Sotos syndrome. It explains basic characteristics of the syndrome as well as shares experiences and expectations on their journey with the syndrome.
Cost is $5.00 US per DVD. Please use order form at the bottom of this page.
"Sotos Syndrome: A Handbook for Families"
Now available in English and Spanish!
by Rebecca Rae Anderson, J.D.; M.S., Bruce A. Buehler, M.D., G. Bradley Schaefer, M.D.
This 55-page soft-bound booklet includes:
A Description of the Syndrome
- The Newborn Period
- Infants and Toddlers
- Young Children
- Differential Diagnoses
- Genes and Heredity
- The Role of the Schools
- Community Resources
- Siblings and Families
- The Wider Community
- Coming to Terms
Medical and Developmental Evaluations
- Central Nervous System
- Internal Organs
- Skeletal System
- Speech and Language
- Eyes and Vision
- Development and Intelligence
- Behavioral and Psychiatric
- Glossary of terms used
How to Order
To order your copies of "Sotos Syndrome: A Handbook for Families" or our DVD:
Please allow 4-8 weeks for delivery.
Please complete this form and mail it to:
Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL 60189
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