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* * Little Rock Conference 2014 – A Huge Success!**

** 2015 Conference to be in Orlando, Florida **

**Click Here for more information**

What is Sotos Syndrome

Sotos syndrome is a genetic condition causing physical overgrowth during the first years of life. Children with Sotos syndrome are often taller, heavier, and have larger heads than their peers. read more

About Us

Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States. The SSSA is a non-profit organization which is incorporated in the state of Missouri. read more.

Our Annual Conference

Families and professionals come from all over the world to learn, network and bond with one another. We combine a program of speakers with social events for the whole family to educate and inspire families on their journey with Sotos Syndrome. read more

Sotos Syndrome: A Handbook for Families

handbook_coverThe third edition of this 64-page soft-bound booklet includes general characteristics, genetics, medical concerns, educational solutions and family and social matters.  Now available in English and Spanishby Rebecca Rae Anderson, J.D.; M.S., Bruce A. Buehler, M.D., G. Bradley Schaefer, M.D. Purchase

A Journey From Diagnosis through Life

CDThis 30 minute video contains interviews of doctors, families and individuals with Sotos syndrome.  Learn the basic characteristics of the syndrome as explained by experts.  Hear from real people as they describe their experiences and expectations.  NOW AVAILABLE with Spanish, Italian and French subtitling. Purchase

   

"A good head and a good heart are always a formidable combination." Nelson Mandela
"Don't let what you cannot do interfere with what you can do." John Wooden
"It all comes to this: the simplest way to be happy is to do good." Helen Keller
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"Always be yourself because the people that matter don't mind and the ones that mind, don't matter."
"Be the change you wish to see in the world."
"The true measure of a man is how he treats someone who can do him absolutely no good." Samuel Johnson
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